Wednesday, December 7, 2016

ASH 2016 with Patient Power

Just back from ASH 2016.  Plenty of interesting things to discuss.  I did a sit down visit with Andrew Schorr of PatientPower where we filmed this 45 minute discussion of relevant topics in CLL.  We were joined by some great docs from MD Anderson and Cambridge Hospital in England.

I am dismayed about my inability to get much blogging done recently.  The good news is that the research side of my career has been soaking up all my free time, but it has left me little time for the blog posts which take me several hours each.

I have a few things I hope to put up if I can get around to it, but thought this video might be useful to folks.  We talk about the role of molecular testing, treatment goals, ibrutinib dosing and other relevant new findings.  I hope you enjoy the video.

As always, you can leave a comment by clicking on the post title and then scrolling to the bottom.  Thanks for watching


8 comments:

  1. thank you for taking to time to post this video. I am newly diagnosed early stage CLL - it was a dreadful experience and I was told little by consultant whose only response was" i cant deal with this today I have a full clinic". I have found out so much from your video and now feel empowered to face my disease.

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  2. Excellent discussion and certainly clarified a few points for me.
    Thanks for the opportunity to view and listen
    Regards
    Mike

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  3. I really appreciate all you do for the CLL community Dr. Sharman and I will echo the comments of others who have mentioned how much you have helped them deal with the stress of this disease. You can be counted on to provide an informed, up to date and honest perspective on issues that are so important to so many of us. Thank you very much.

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  4. Great video guys! Thanks for your commitment to us. I was diagnosed with SLL in 2013. Started with Rituxan & Revlimid in Jan 2014 & switched to Ibrutinib in April 2014. Continuing to do well after 2-1/2 yrs on IBR. As Andrew said, "God speed to you in your research." LongTallTexan

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  5. Very many thanks for this - so clear and informative. Very good timing for me as I try to make a decision about retreatment.
    Thanks to everyone involved.

    MaryC

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  6. Newly diagnosed with CLL, I found your presentation both informative and encouraging. Thank you for sharing!

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  7. Really appreciate the post. I've been following you for 5+ years. Will soon enter the Dana Farber combination trial on ibruntinib plus obinituzimab, hoping to advance knowledge.

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  8. You made some decent points there. I looked on the net to the issue and located most individuals is going coupled with with all your internet site. You need to get involved in a contest for one of the most useful blogs on the web. I’m going to recommend this web site to my friends!

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